ARCHIVE: NTFS OF PHGEN I

Preparation Material für PHGEN NTFs:

- PHGEN NTF Manual update 2/2007 (long version) [PDF]
- PHGEN NTF Manual update 2/2007 (PPT version) [PDF]
- Bellagio Report [PDF]
- The path from genome-based research to population health: Development
  of an international public health genomics network [PDF]
- Public Health Genomics European Network [PDF]
- Fact Sheet -update- [PDF]

If you have any questions on setting up a PHGEN NTF, please contact phgen@loegd.nrw.de

Reports from PHGEN NTF meetings:

June, 19th 2006
The Turkish NTF has met in Ankara for the first time. Find the report here.

1st NTF Meeting in Ankara June, 19th 2006

July, 10th 2006
NTF Italy has met in Rome for the first time. Here is the report

Report in an Italian Public Health journal, 14.11.2006, p. 18 (in Italian)

October, 5th 2006
2nd Meeting NTF Italy in Bologna

November, 3rd 2006
1st Meeting NTF Portugal in Porto
Here is the documentation

1st meeting NTF Portugal November, 3rd 2006

November, 24th 2006
1st German NTF Meeting in Bielefeld and opening German Center for Public Health Genomics (DZPHG) at the University of Applied Sciences
Find the minutes of the NTF meeting here.

Public Health Genomics European Network
Lecture of Prof. Dr. Angela Brand (Speaker PHGEN)
Befähigungsgerechtigkeit als ethisches Benchmark für Public Health Genomics
Lecture of Prof. Dr. Peter Dabrock
Public Health Genomics Law-Grundzüge der zukünftigen Entwicklung eines neuen Rechtsgebietes
Lecture of Tobias Schulte in den Bäumen

Press releases
- Informationsdienst Wissenschaft (idw) November, 24th 2006
- 'Westfalen-Blatt' November, 25th 2006
- 'Neue Westfälische' November, 28th 2006

1st meeting NTF Germany November, 24th 2006

November, 29th 2006
1st Belgian Task Force Meeting in Brussels
Here you can find the minutes

January, 12th 2007
1st Spanish NTF Meeting in Barcelona

Group photo-1st meeting NTF Spain, January, 12th 2007

January, 19th 2007
2nd Belgian Task Force Meeting in Brussels
Here is the report.

January, 24th 2007
1st Dutch National Task Force Meeting in Rotterdam
Look at the participants' PPT's:
Angela Brand: Public Health Genomics European Network
Leo P ten Kate: Public Health Genomics/ Community Genetics
Cecile Janssens: Future developments and applications
Martina Cornel: Genetic testing & genetic screening
Gerard Loeber: National neonatal screening programme
Dirk Stemerding: Public Health Landscapes-patterns, singularities and challenges
Gouke J. Bonsel: Evaluative PHGEN research in the Netherlands
Aart Hendriks: Legal Issues
Sietske Homsma: Public Health Genomics-insurance point of view
Cor Oosterwijk: Consumer involvement and informing the public
Martina Cornel: Training & education 
Hub Zwart: Public Health Genomics and Society

February, 9th 2007
2nd meeting National Task Force Portugal

April, 13th 2007
3rd Belgian Task Force Meeting in Brussels
See the minutes.

May, 10th 2007
2nd Meeting German National Task Force at the Helmoltz Center for Infection Research, Braunschweig
hosted by Prof. Rudi Balling, Scientific Director of the HZI

Find the minutes of the 2nd NTF meeting here.

Public Health Genomics European Network
Prof. Dr. Angela Brand (Speaker PHGEN)
Vorstellung ULD Schleswig-Holstein
Dr. Lukas Gundermann
CRIP-Central Research Infrastructure for molecular Pathology
Dr. Christina Schröder (RZPD Berlin)
Update über PHGEN Aktivitäten
Dr. Peter Schröder-Bäck and Tobias Schulte in den Bäumen

May, 29th 2007, 2nd Spanish NTF Meeting
+++   NEWS   ++   ACTIVITIES  +++

PHGEN I ended in March 2009. PHGEN II continued at Maastricht University and was led by Prof. Dr. Angela Brand. PHGEN II has officially ended on 30 November 2012 with the reporting period ending on 30 January 2013.

++++++++++++++++++++++++++++++++

Follow us on TWITTER!

++++++++++++++++++++++++++++++++

PHGEN II as a Success Story, Biobanks and Personalized Medicine

PHGEN II has been selected as one of the success stories funded by the EU heath programs. The detailed report can be found here. PHGEN II has also been mentioned in the report of the European Commission expert group on biobanks and can be found here. Further our project has been pubished in the European Science Foundation's 'Personalised Medicine for the European Citizen' and can be found here.

++++++++++++++++++++++++++++++++

Meeting of European Alliance for Personalised Medicine

Commissioner Dalli (speech) and Cyprus Minister Mavroyiannis launched in Brussels on 18 September 2012 the manifesto by the newly-formed European Alliance for Personalised Medicine (EAPM), which brings together patient groups, academia, health professionals and industry, as well as the European Commission and the European Medicines Agency. This news has been covered by APM Health and the European Parliament Magazine. Click here for the picture of our PHGEN coordinator discussing with Commissioner Dalli.

++++++++++++++++++++++++++++++++

Guidelines Published

During the final meeting in April 2012 in Rome, the PHGEN II European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies have been officially endorsed as the "Declaration of Rome 2012" by the  European Member States as well as European key Institutions and Organizations such as EMA. The "Declaration of Rome 2012" has been published in the Journal "Drug Metabolism and Drug Interactions". It can be downloaded for free at the journal website here. Also a related editorial has also been published in the same journal which can be found at the journal website here. The "Declaration of Rome 2012" is the summary of the European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies produced in the form of 3 individual reports (QA, Provision & Use) by the PHGEN II consortium. These 3 parts can be accees below:

Part I: European Best Practice Guidelines for Quality Assurance of Genome-based Information and Technologies

Part II: European Best Practice Guidelines for Provision of Genome-based Information and Technologies   

Part III: European Best Practice Guidelines for Use of Genome-based Information and Technologies   

++++++++++++++++++++++++++++++++

PHGEN II Extension Granted

Given the success of the project and realizing the deliverables go beyond the current deliverables, the PHGEN II project has been granted a 6 months cost netural extension by the EAHC. Therefore, the project will continue till the 30 November 2012. Originally the project was till 30 May 2012.

++++++++++++++++++++++++++++++++

PHGEN II Final Meeting Rome

The PHGEN II final meeting (endorsement panel) took place in Rome, Italy. It was a success. Further information can be found here.

PHGEN Definitions

PHGEN II has released the definitions list which will be used as the guiding tools for the development of the guidelines. These constitute definitions developed during PHGEN I as well as new definitions. This can be found by clicking the link here.

++++++++++++++++++++++++++++++++

The 3rd and final Steering Committee Meeting of PHGEN II took place on 23 February 2012 in Maastricht, The Netherlands. Further information can be found here.

++++++++++++++++++++++++++++++++

ITFoM is one of six pilot projects in the European Future and Emerging Technologies Flagship scheme. These projects are vying for €1 billion funding from both the European Commission, Member States and other sources over ten years in order to generate a scientific revolution. Further information can be found from here.

++++++++++++++++++++++++++++++++

Old information and news of PHGEN II can be found in the Archives here.

++++++++++++++++++++++++++++++++

Publications

Public Health Genomics Journal
(Journal published in collaboration with GRaPH-Int)

'Public Health Genomics' is the first peer-reviewed international journal to focus on the translation of genome-based knowledge and technologies into public policy, disease prevention and the improvement of population health. It is a multidisciplinary bi-monthly forum containing conceptual and original research articles, editorials, reviews, short communications, country reports, case studies, viewpoints, news and various other features about the nature of public health genomics and related concepts.

For more details please visit http://www.karger.com/phg

PHGEN II is currently also developing a Wiki. This can be accessed here

PHGEN II is coordinated by the Institute for Public Health Genomics (IPHG) at Maastricht University.  The publication list contributed by partners of PHGEN II can be found here.

The IPHG coordinated the bachelor's program Public Health Genomics. The output of the successful course was a report made by the students with supervision from their supervisors. The report can be found here.

Up coming Events

PHGEN II events have now officially ended.