ARCHIVE: Resources/Links of PHGEN I

Resources:

Key Publications in Public Health Genomics; PHG Foundation Cambridge, UK

Joint Statemtent on the "OECD Draft Guidelines for Quality Assurance in Molecular Genetic Testing" (8/2006)

Wylie Burke; Muin J. Khoury; Alison Stewart; Ronald L. Zimmern; for the Bellagio Group: The path from genome-based research to population health: Development of an international public health genomics network.
Genetics in Medicine. 8(7):451-458, July 2006

BIO4EU Symposium on consequences, opportunities and challenges of modern biotechnology for Europe (Brussels, 20 April 2007)

Scientific Consultation Group met at ECDC in Stockholm on 27/28th of February

Helmut Brand: Meeting of the Network of the Competent Authorities and the Network of Working Party Leaders of the Public Health Programme of the European Commission, Luxembourg, 30.-31.1.2007

Peter Schröder: "Principles for Public Health Ethics-Ethical Foundations for Good Genomic Governance" ESRC Conference, January 2007, Exeter, UK

Angela Brand (Speaker PHGEN):"Public Health Genomics European Network" German NTF November 2006, Bielefeld

Peter Dabrock:"Befähigungsgerechtigkeit als ethisches Benchmark für Public Health Genomics" German NTF November 2006, Bielefeld

Tobias Schulte in den Bäumen:"Public Health Genomics Law-Grundzüge der zukünftigen Entwicklung eines neuen Rechtsgebietes" German NTF November 2006, Bielefeld

Documentation of the PHGEN 1st Network Meeting: "Assessing Issues and Priorities of Public Health Genomics" Bielefeld, February, 8th & 9th 2006

Press Release PHGEN 1st Network Meeting 2/2006 (English / German)

Special Paper: Ten Kate, LP: Community Genetics: A Bridge between Clinical Genetics and Public Health. Community Genet 2005; 8: 7-11 (link to abstract)

Peter Schröder / Helmut Brand: "The Role of Genetic Determinants in a New EU Health Strategy - A Case for PHGEN". Presentation held at: 13th European Conference on Public Health (EUPHA). Graz, Austria, 12.11.2005

EU: Public Health Programme (2003-2008):Call for Proposals & Work Plan 2006

Public Health Genomics European Network (PHGEN): Self Governance Rules

Community Genetics, Vol. 9, No. 1. Special Issue 'Public Health Genetics'

First International Symposium on Public Health Genetics (2/2004)
 
ZiF Task Force Public Health Genetics 

The Bellagio Report, Italy 14-20 April 2005  

 

Public Health Genomics Educational Material:

CDC-Centers for Disease, Control and Prevention

Genome British Columbia - Genomics education

Glaxo Smith Kline - Information for the general public: Understanding genetics

Public Health Genomics-from Wikipedia, the free encyclopedia

 

Links:

PHG Foundation, Cambridge, UK

Genomics and Disease Prevention, Centers for Disease Control and Prevention, Atlanta

EUROGENTEST

EUnetHTA - European Network for Health Technology Assessment

EUROCAT - European Surveillance of Congenital Anomalies


EU Projects run by LÖGD:

Benchmarking Regional Health Management (BEN I and II)

Evaluation of Cross Border Activities in the European Union (Euregio)

Evaluation of National and Regional Public Health Reports (Eva PHR) 

Policy Impact Assessment of Public Health Reporting (PIA)

+++   NEWS   ++   ACTIVITIES  +++

PHGEN I ended in March 2009. PHGEN II continued at Maastricht University and was led by Prof. Dr. Angela Brand. PHGEN II has officially ended on 30 November 2012 with the reporting period ending on 30 January 2013.

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PHGEN II as a Success Story, Biobanks and Personalized Medicine

PHGEN II has been selected as one of the success stories funded by the EU heath programs. The detailed report can be found here. PHGEN II has also been mentioned in the report of the European Commission expert group on biobanks and can be found here. Further our project has been pubished in the European Science Foundation's 'Personalised Medicine for the European Citizen' and can be found here.

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Meeting of European Alliance for Personalised Medicine

Commissioner Dalli (speech) and Cyprus Minister Mavroyiannis launched in Brussels on 18 September 2012 the manifesto by the newly-formed European Alliance for Personalised Medicine (EAPM), which brings together patient groups, academia, health professionals and industry, as well as the European Commission and the European Medicines Agency. This news has been covered by APM Health and the European Parliament Magazine. Click here for the picture of our PHGEN coordinator discussing with Commissioner Dalli.

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Guidelines Published

During the final meeting in April 2012 in Rome, the PHGEN II European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies have been officially endorsed as the "Declaration of Rome 2012" by the  European Member States as well as European key Institutions and Organizations such as EMA. The "Declaration of Rome 2012" has been published in the Journal "Drug Metabolism and Drug Interactions". It can be downloaded for free at the journal website here. Also a related editorial has also been published in the same journal which can be found at the journal website here. The "Declaration of Rome 2012" is the summary of the European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies produced in the form of 3 individual reports (QA, Provision & Use) by the PHGEN II consortium. These 3 parts can be accees below:

Part I: European Best Practice Guidelines for Quality Assurance of Genome-based Information and Technologies

Part II: European Best Practice Guidelines for Provision of Genome-based Information and Technologies   

Part III: European Best Practice Guidelines for Use of Genome-based Information and Technologies   

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PHGEN II Extension Granted

Given the success of the project and realizing the deliverables go beyond the current deliverables, the PHGEN II project has been granted a 6 months cost netural extension by the EAHC. Therefore, the project will continue till the 30 November 2012. Originally the project was till 30 May 2012.

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PHGEN II Final Meeting Rome

The PHGEN II final meeting (endorsement panel) took place in Rome, Italy. It was a success. Further information can be found here.

PHGEN Definitions

PHGEN II has released the definitions list which will be used as the guiding tools for the development of the guidelines. These constitute definitions developed during PHGEN I as well as new definitions. This can be found by clicking the link here.

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The 3rd and final Steering Committee Meeting of PHGEN II took place on 23 February 2012 in Maastricht, The Netherlands. Further information can be found here.

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ITFoM is one of six pilot projects in the European Future and Emerging Technologies Flagship scheme. These projects are vying for €1 billion funding from both the European Commission, Member States and other sources over ten years in order to generate a scientific revolution. Further information can be found from here.

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Old information and news of PHGEN II can be found in the Archives here.

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Publications

Public Health Genomics Journal
(Journal published in collaboration with GRaPH-Int)

'Public Health Genomics' is the first peer-reviewed international journal to focus on the translation of genome-based knowledge and technologies into public policy, disease prevention and the improvement of population health. It is a multidisciplinary bi-monthly forum containing conceptual and original research articles, editorials, reviews, short communications, country reports, case studies, viewpoints, news and various other features about the nature of public health genomics and related concepts.

For more details please visit http://www.karger.com/phg

PHGEN II is currently also developing a Wiki. This can be accessed here

PHGEN II is coordinated by the Institute for Public Health Genomics (IPHG) at Maastricht University.  The publication list contributed by partners of PHGEN II can be found here.

The IPHG coordinated the bachelor's program Public Health Genomics. The output of the successful course was a report made by the students with supervision from their supervisors. The report can be found here.

Up coming Events

PHGEN II events have now officially ended.