PHGEN II Endorsement and Final Meeting

The final PHGEN II meeting in which the guidelines summary was presented in the form of the Rome Declaration took place at the Radisson Blu hotel from 19-20 April 2012 in Rome, Italy. Details of the meeting can be found below.

1. The agenda, list of PHGEN partners and PHGEN attendance list can be found here.

2. The background documentation of PHGEN II can be found here.

3. Relevant publications can be found here.

4. The presentations of the meeting can be seen below

Day 1

PHGEN II - A brief history of time

Priorities for Public Health Genomics in the next decade

Perspectives of the private sector: Richard Imrich, Nathalie Stieger

Perspectives from key European Initiatives: Domenica Taruscio, Stephane Berghmans, Mario Fraga

Declaration of Rome

Endorsement Panel comments on Declaration of Rome: Ingeborg Blancquaert, Hans-Peter Dauben, Marisa Papaluca-Amati, Adriano Henny

Fulfulling the promise of the Human Genome Project: from personal medicine to personal health

Day 2

Three dimensions of Public Health Genomics: Personalized healthcare, ICT and European Law

PHGEN II Case Studies: Nutrigenomics and Cancer

PHGEN National Task Forces: Spain and Hungary

5. The official report/minutes of the two day meeting can be found here.

Dissemination Information

During the final meeting in April 2012 in Rome, the PHGEN II European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies have been officially endorsed as the "Declaration of Rome 2012" by the  European Member States as well as European key Institutions and Organizations such as EMA. The "Declaration of Rome 2012" has been published in the Journal "Drug Metabolism and Drug Interactions". It can be downloaded for free at the journal website here. Also a related editorial has also been published in the same journal which can be found at the journal website here. The "Declaration of Rome 2012" is the summary of the European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies produced in the form of 3 individual reports (QA, Provision & Use) by the PHGEN II consortium. These 3 parts can be accees below:

Part I: European Best Practice Guidelines for Quality Assurance of Genome-based Information and Technologies

Part II: European Best Practice Guidelines for Provision of Genome-based Information and Technologies   

Part III: European Best Practice Guidelines for Use of Genome-based Information and Technologies

An article published in the medical journal Hipocrate regarding PHGEN final meeting can be found here (in Romanian). The English version will be published soon.

Pictures from the conference

Click on the pictures below to see the enlarged format.

A view of the conference
Another angle of the conference session
Panel of "Perspectives from key European initiatives and institutions"
Participants listening on
View of the "Delcaration of Rome" session in progress
Declaration of Rome Endorsement Panel in session
Picture of the panel of presenters on the "Three dimensions of Public Health Genomics"
Panel of chairs and presenters of the Case Studies and National Task Forces
Group Photograph of the participants
View of the dinner at the end of the successful Final PHGEN II meeting
+++   NEWS   ++   ACTIVITIES  +++

PHGEN I ended in March 2009. PHGEN II continued at Maastricht University and was led by Prof. Dr. Angela Brand. PHGEN II has officially ended on 30 November 2012 with the reporting period ending on 30 January 2013.

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PHGEN II as a Success Story, Biobanks and Personalized Medicine

PHGEN II has been selected as one of the success stories funded by the EU heath programs. The detailed report can be found here. PHGEN II has also been mentioned in the report of the European Commission expert group on biobanks and can be found here. Further our project has been pubished in the European Science Foundation's 'Personalised Medicine for the European Citizen' and can be found here.

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Meeting of European Alliance for Personalised Medicine

Commissioner Dalli (speech) and Cyprus Minister Mavroyiannis launched in Brussels on 18 September 2012 the manifesto by the newly-formed European Alliance for Personalised Medicine (EAPM), which brings together patient groups, academia, health professionals and industry, as well as the European Commission and the European Medicines Agency. This news has been covered by APM Health and the European Parliament Magazine. Click here for the picture of our PHGEN coordinator discussing with Commissioner Dalli.

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Guidelines Published

During the final meeting in April 2012 in Rome, the PHGEN II European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies have been officially endorsed as the "Declaration of Rome 2012" by the  European Member States as well as European key Institutions and Organizations such as EMA. The "Declaration of Rome 2012" has been published in the Journal "Drug Metabolism and Drug Interactions". It can be downloaded for free at the journal website here. Also a related editorial has also been published in the same journal which can be found at the journal website here. The "Declaration of Rome 2012" is the summary of the European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies produced in the form of 3 individual reports (QA, Provision & Use) by the PHGEN II consortium. These 3 parts can be accees below:

Part I: European Best Practice Guidelines for Quality Assurance of Genome-based Information and Technologies

Part II: European Best Practice Guidelines for Provision of Genome-based Information and Technologies   

Part III: European Best Practice Guidelines for Use of Genome-based Information and Technologies   

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PHGEN II Extension Granted

Given the success of the project and realizing the deliverables go beyond the current deliverables, the PHGEN II project has been granted a 6 months cost netural extension by the EAHC. Therefore, the project will continue till the 30 November 2012. Originally the project was till 30 May 2012.

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PHGEN II Final Meeting Rome

The PHGEN II final meeting (endorsement panel) took place in Rome, Italy. It was a success. Further information can be found here.

PHGEN Definitions

PHGEN II has released the definitions list which will be used as the guiding tools for the development of the guidelines. These constitute definitions developed during PHGEN I as well as new definitions. This can be found by clicking the link here.

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The 3rd and final Steering Committee Meeting of PHGEN II took place on 23 February 2012 in Maastricht, The Netherlands. Further information can be found here.

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ITFoM is one of six pilot projects in the European Future and Emerging Technologies Flagship scheme. These projects are vying for €1 billion funding from both the European Commission, Member States and other sources over ten years in order to generate a scientific revolution. Further information can be found from here.

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Old information and news of PHGEN II can be found in the Archives here.

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Publications

Public Health Genomics Journal
(Journal published in collaboration with GRaPH-Int)

'Public Health Genomics' is the first peer-reviewed international journal to focus on the translation of genome-based knowledge and technologies into public policy, disease prevention and the improvement of population health. It is a multidisciplinary bi-monthly forum containing conceptual and original research articles, editorials, reviews, short communications, country reports, case studies, viewpoints, news and various other features about the nature of public health genomics and related concepts.

For more details please visit http://www.karger.com/phg

PHGEN II is currently also developing a Wiki. This can be accessed here

PHGEN II is coordinated by the Institute for Public Health Genomics (IPHG) at Maastricht University.  The publication list contributed by partners of PHGEN II can be found here.

The IPHG coordinated the bachelor's program Public Health Genomics. The output of the successful course was a report made by the students with supervision from their supervisors. The report can be found here.

Up coming Events

PHGEN II events have now officially ended.